Im still here.
I decided to reactivate my blog to use as a tool to put all my thoughts down as a well constructed process.
So far i have been on every synthetic drug out there. Tirosint/synthroid/generic/ t4/ t4 and t3. Now I just started Levoxyl about 2 weeks ago. My current protocol is I take 1/2 112 and 1/2 125 which is 118.5 total daily. When i was taking synthroid, 125 was way too much. And when i lowered it to 112 it was too little. So on the Levoxyl I decided to start in the middle. But so far it has not been too different than the synthroid. I honestly feel like I am on too much, but my labs always show otherwise. I also took Naturethroid, armour before my thyroid came out, and i truly believe that taking too much naturethroid was the reason i ended up having so many issues that caused me to have my thyroid removed. I tried erfa after the removal, but i don't think i did it correctly, or was on the wrong dose. I cant even remember what i was on it was so long ago.
I had my adrenals tested through quest a few weeks ago and through quest as i didnt really trust some of the online hokey companies and they tested perfect.
Current medications
125 / 112 split levoxyl taken at night before bed
.5 cc B12 injected weekly
10,000 D every other day (down from every day)
.125 clonzepam at night (down from 3 MG)
10 mg ambien nightly
digestive enxymes
I was taking 5 of cytomel split into 2 daily but that caused so much irritability and anxiety i had to drop it.
Currently I take my meds at 10 pm. I am jolted out of bed with anxiety about 4 am. Then i fall back to sleep.
I wake up feeling pretty good. Then around 2 pm, ears start to ring, heart starts skipping or beating faster. I start getting anxious and irritable. Also brain fog and fatigue. The fatigue is not overwhelming but i could probably lie down if given the chance. Then as 3 pm and 4 pm approach, the ringing in my ears gets more intense. sometimes it will change tones as well. Sometimes the agitation from the anxiety is so intense its debilitating. Then all of a sudden, the anxiety subsides slightly as the night comes on. Then by bedtime, feeling pretty decent. I take my ambien at and then about 25 mins later my thyroid and i go to bed. Also the feeling to crack my neck and joints all the time.
My D level is 95 ranges 25-100
My B is 950 ranges 400-1100
I have tried gluten free, that does not work
I have had extensive ear work ups and blood tests done, all negative
I have had MRI's of my ears and brain all clean
Everything seems to point back to the thyroid or lack of (removed in 2010). Its either;
1. too much or too little meds
2. the wrong meds
3. my body doesn't like the meds
the biggest symptom is the ears clogged and ringing. I have also started to think i need to try taking the thyroid hormone in the morning instead of at night but i cant believe this would make much of a difference.
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