It has been two months since I have posted any updates. Not much has changed in the last 43 days either. I had a biopsy done and it said that ive got pretty bad hashimotos. The right side is pretty much a goner. The left side is on its way out and the middle looks like it just came out of the box.
I am still deciding whether or not to get the thyroid removed. I would desperately like to get it under control with medications but cant seem to catch a break on this. I dont understand why, but the radiologist says that it is because the good is battling it out with evil and they cant see eye to eye with each other. I am currently taking T3 only with a drop of Hydrocortosine at 12 pm noon. I get the worst wave of shit in the morning, then progressively gets better as the day goes on. My throat hurts like piss all the time. Mainly on the right side. Seems to swell up. I tried naturethroid and it made it worse.
So here are my questions. Can you answer this?
1. I am on T3 synthroid, if i ever get used to taking this, what will be my next step? Armour, T4? Am I doing more harm by delaying the process by taking just T3?
2. Why do half the advocates say t4 is the way to go because it allows the body to do its own converting, and the other half say that NT is the way to go? I have studied that the ratio in armour and naturethroid is not equal to the parts of the human conversion system.
3. Why do 1/2 of the people who take thyroid feel better instantly, and didnt even really know they had a problem, yet others cannot tolerate any thyroid at all? It seems like people like me, its just a waiting game (maybe I will feel better tomorrow, but it never happens)
4. If i cannot get balanced out with hormone, wouldnt having the diseased organ removed remedy this?
5. Should I look at possibly having a compound done?
6. Seriously, seriously, does anyone like in my situation ever ever feel better? I get the point. Message sent!
1. armour is worth trying, sounds like you still have some experimenting left to do,,,meaning you haven't exhausted every single option. there is acella as well which may be more like the old armour.
ReplyDelete2. the 'advocates' as in md's? they advocate t4 only because they are taught by the drug companies to push t4. synthroid worshipers. it's a conspiracy and yes i believe that even though i am not normally so committed.
3. some people are truly not in touch with their bodies and so they feel better because they barely noticed being sick until a doc said their labs were off. other people, like us, take a long time to heal and find out that we don't just have some simple thyroid issue. if we have hashimoto's, there is an autoimmune attack going on which means your body is attacking your thyroid. can start with an infection, food sensitivity, stress, or whatever else but popping a pill doesn't always make it all go away. sometimes dietary changes (especially sacrificing the almighty gluten) need to take place as well as healing stressed out adrenals
4.removing the diseased organ doesn't make the problem go away...you still technically have a deficient immune system, you have simply removed its latest target. healing has to happen through the whole body , not by surgical removal of one part of it
5. yes
6. yes. but it ain't always easy if you haven't noticed. i am a texan too and we don't go down without a fight. keep digging, you will get there!
1. "T3 Synthroid"? Do you mean "T3 and Synthroid"?? Or do you mean T3 Cytomel? Because T3 is not Synthroid. Synthroid is T4. Cytomel is a brand name for T3. Yes, as long as your RT3 ratio has not been below 20 the last two months, and as long as your adrenal function and iron levels are where they should be, you can move over to desiccated thyroid.
ReplyDelete2. Only someone who is completely clueless to the reported experience of MILLIONS of patients around the world on T4 would say T4 is the way to go. And it doesn't matter if the T4 and T3 in desiccated thyroid is not equal to human parts of T4 and T3. It's close enough; it's the T3 and where it falls in the range that counts; and a huge body of successful patient experience all over the world proves that.
3. Those who can't tolerate it nearly ALWAYS have either an adrenal problem or an iron problem or both. I thought you knew that.
4. A diseased organ simply means it's dead. Why go to the misery of surgery to remove it when it won't hurt you to stay there, especially if you are on enough T3 or desiccated thyroid, and treating everything else correctly? Having a "diseased part of your thyroid" doesn't mean that diseased part is sending out little daggers, squirting out poison or yelling dirty words to the rest of your body.
5. If you have plenty of money, compounded is fine. If you want to save money, going on a brand name desiccated thyroid works well. http://www.stopthethyroidmadness.com/options-for-thyroid-treatment
6. Do you really think you're the only person in the whole wide world who has felt like crap, had Hashimotos, and didn't feel well?? C'mon. And they also find themselves feeling wonderful again when they listen to patient experience and become proactive in the doctor's office. Learn, listen, seek the experience of patients. Your answers are all there. Message sent! www.stopthethyroidmadness.com
I know how you feel but its not the end of the road. Just stick to your thyroid medications and follow your doctors advise.
ReplyDeleteAs I read your experience, the first question that comes to my mind is: When the doctors first started you on thyroid medicine, what has your titration process been like? Did you start low and go slow?
ReplyDeletethe tone of your writing sounds as though you might be hyperthyroid and on too high a dose of meds. i get really irritable when taking too much meds.
ReplyDeletefind a doctor who knows how to get your numbers where they should be. many patients report feeling better when their FT3 and FT4 are in the upper third of the range. everybody is a little different but this should give you a guideline.
make sure your adrenals are able to tolerate the T3 you're taking. and check that you're not anaemic.
and like Laura said, start low and go slow. meaning a SMALL dose increase only every 8 weeks.
test those adrenals! maybe lay off the coffee.